Believe it or not this is our 20th day in the ICU. We have been humbled by the tremendous outpouring of love, prayer and support for Evan and our family. It has been impossible to respond to all the emails, calls and texts all wanting to know “How is Evan?” Now that things have calmed down a bit I decided to put up this blog so everyone can keep up with with the latest news about Evan. We still welcome your calls, letters, emails, etc however this blog will serve as a central place for everything Evan.
I was optimistic when I arrived and had a little fun sharing my breakfast banana sticker with Evan.
Today was a fairly difficult day. When “awake” Evan was pretty much miserable. He spent the better part of today trying to find his comfort zone.  Constantly squirming, grimacing and whining. After a couple hours into each episode we had the nurse help him relax with a dose of meds to calm him and let him get back to sleep.
As of today he still has a feeding tube in through his nose. For several reasons this isn’t a good long term solution. The Doctors had scheduled him for tomorrow to have a longer term feeding tube put straight in through his side. In the late morning he spiked a 101.7 fever which led to a blood test that revealed some sort of infection brewing. Surgery has now been postponed until sometime next week.
It is now after 10PM and Evan is sound asleep. His nurse for the night shift (7PM-7AM) is one of the best. Not much more I can do for him now so I am going home.