It’s been 48 hours since Evan’s PEG was inserted. Since then he is back to his regular cycle of going through long periods of sleep followed by long, painful periods of what we call contractions. For hours at a time he stiffens up, arches his body and cries followed by a brief periods of calm before the next contraction start back up again. Holding him, massaging him or talking/singing to him does not appear to make it better, so we are left unable to help Evan through his contractions. This is hard.
The doctors continue to adjust his medications. Starting tonight we are going to give him a larger dose of the chloral hydrate (sedation medicine) to try to get him back to a normal sleep cycle. I wish we had a more significant update, unfortunately progress seems to happen slowly. Please keep Evan in your prayers and we hopefully will have better news for you soon.
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Contractions
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Brian & Sharon,
Thanks for the updates. We love you and pray for you everyday. I will come by to keep company when we return. Please let us know if you need anything at all.
Aina & Gordon
Brian and family,
I just wanted you to know that I check your blog daily and think of your little boy all of the time…I can’t imagine how hard this must be for you but please know you have people all over the country praying for Evan and your whole family. Please stay strong and be sure to take as good care of each other as you clearly are of Evan (spoken from an RN’s point of view…). G-d bless you all.
Jenni
You are all in my thoughts and prayers constantly. Thank you for the updates here.
-Renee
(Viki’s friend)
Sending lots of love your way!!! i am in Arizona visiting my sister. i will call when I get home. Love, H
I was best friends with Eric growing up – and to know that your family is suffering through this breaks my heart – I read this daily and am praying for all of you. Be strong and hang in there!
A Christian friend of mine told me about Evan and asked my husband and I to pray for him. She is the one who gave us the website and we want you to know we pray for him daily and look forward to the day he is healed. God Bless you. David and Sande Rangel
A Christian friend of ours told us about Evan and asked us to pray for him. She is the one who gave us the website and we want you to know we pray for him daily and look forward to the day he is healed. God Bless you. David and Sande Rangel