Evan had a busy day today starting with an early morning visit with Grandma and Grandpa. They were at the hospital bright and early at 7:30am! The nurse had a clever idea to put Evan in a Radio Flyer wagon cushioned with lots of pillows and blankets, and positioned the wagon between Grandma/pa’s chairs so they wouldn’t be too far from him. Evan was awake most of the time they were here but very stiff and agitated.
In an effort to find the right combination of drugs to keep Evan relaxed, the doctors have been adjusting his meds. Today, we halved one of them and still found that he responded reasonably well. After his feeding, Evan and Daddy went on a walk around the floor in the wagon. He seemed exhausted after this excursion and after a quick sponge bath, quickly fell asleep before we could even put his clothes on and without any sedatives.
Hoping for a good rest of the night…
Dear Sharon, I’m not sure if you remember me but I am a friend of Sharon Miller and was present at her wedding. She just shared the news with me re: Evan. I want you to know Evan and your family are in my prayers and thoughts. Please take care and be strong, I know this a very difficult time for you and there may be no words to ease your heart and mind but know I’m thinking of you and Evan.
Sincerely, Sheri
OMG a wagon ride! How fun. Can you also take him for a walk outside in the fresh air? We lit a Shabbat candle for Evan on Friday.
Thanks for keeping everyone updated on Evan. We’re thinking of your family often and will keep praying for Evan’s continued improvement.
This blog is a wonderful idea and those of us on the east coast especially appreciate it. Wishing you all the very best – you are in my thoughts and prayers.
As friends of Adam, we have been deeply touched by your story and our family has been saying prayers since day one. Thank you for posting updates. Our boys Nicholas (9) and Nathan (6) now know what your beautiful Evan looks like. We continue to pray for his full recovery.
Lene and the girls are praying for Evan. Sharon and Brian you are always in our thoughts and prayers.
Dear Sharon & Family,
Evan is in my thoughts and prayers every moment. Thank you for sharing his progress with us… I’m happy to hear he went on a wagon ride. We are sending you all our love and positive thoughts. Love, Maggie
Hi there!
Thinking of Evan and hoping he is having a good week. I’m working all weekend fri-sun I’ll come by to visit.