Evan had a busy day today starting with an early morning visit with Grandma and Grandpa.  They were at the hospital bright and early at 7:30am!  The nurse had a clever idea to put Evan in a Radio Flyer wagon cushioned with lots of pillows and blankets, and positioned the wagon between Grandma/pa’s chairs so they wouldn’t be too far from him.  Evan was awake most of the time they were here but very stiff and agitated.

In an effort to find the right combination of drugs to keep Evan relaxed, the doctors have been adjusting his meds.  Today, we halved one of them and still found that he responded reasonably well.   After his feeding, Evan and Daddy went on a walk around the floor in the wagon.  He seemed exhausted after this excursion and after a quick sponge bath, quickly  fell asleep before we could even put his clothes on  and without any sedatives.

Hoping for a good rest of the night…